This post is the final post (for now) in my Health Stigma & Privilege series. If you are new to the series, you may want to read the initial posts defining health stigma and healthy privilege and exploring how health stigma creates harm.
In the first two posts I have shared an initial definition of health stigma and healthy privilege. I’ve talked a bit about the damage that health stigma can cause. Today, I want to talk about how to challenge and cope with health stigma and healthy privilege. This post has been the toughest post to write. As I wrestled with the ideas for the post, I realized that what I was running into was a dilemma of competing truths. It is true that, as a psychologist, I am always looking for the choices that we have to cope in healthy ways, to find our points of control, to be active in supporting health. It is also true that health stigma and healthy privilege are big, systemic problems, which feel hard to change or challenge.
Initially, I felt pretty stumped. But one of the things I tell my clients is that we can only deal with what is in front of us. And so I took that logic and applied it to the issue of challenging healthy privilege. What I have are a few “mouse-sized” ideas for dealing with an elephant-sized issue. Things that you might be able to do even if you’re exhausted. Things that aren’t too big to add to plates that are already full.
Mouse-Sized Coping Strategies
- Know that you are not alone, crazy, lazy or “difficult.” If the response to this series has taught me nothing else, it has taught me that there are many, many people who have experienced some level of health stigma or healthy privilege as they cope with their illness. For many of us, understanding that this is a real phenomenon, and that others have walked this path too, is powerful. Remind yourself that you aren’t alone.
- Connect with others. Patient communities aren’t perfect, but they do provide spaces in real life and online for you to connect with others who share your experiences. And as you are connecting, you can also practice step 3:
- Speak your truth. Part of what allows privilege of any type to remain in place is that it is often invisible. If these ideas ring true for you, put it in writing. Carolyn Thomas did just that in this piece on her HeartSisters blog. So did the author of the My Fainting Goat blog in her response about the deep roots of privilege. As you can see in the comments on Carolyn’s piece, when one person shares, others open up as well. The more of us who are speaking about privilege, the louder the voice becomes.
- Enlist advocates. If you don’t feel heard by your doctor, or your family–bring in a third party. Find someone who does understand and ask them to assist you. Sometimes, a neutral third voice is easier to hear. This might be a therapist, a pastor, a friend, a patient navigator–there are lots of options. You don’t have to do this alone.
- Stand your ground. What you are experiencing is not imaginary. You deserve to have your experience heard and respected.
- Don’t forget your self-care. At the end of the day, you have to know yourself and care for yourself. If you are too tired to struggle today, take a rest. Remember to breathe. Pay attention to the basics–sleep, nutrition, and exercise. Get good emotional support.
Okay folks, now it is your turn. This is not an issue that any one of us will fix on our own. We need a community that is naming these issues, naming the ways that they harm, and supporting one another in pushing back. What “mouse-sized” strategies would you suggest?
Image Credit: Photo by teclasorg via Flickr under Creative Commons License